Dedicated to Improving the
Lives of Children, Adults & Families Affected by SYNGAP1

We are Bridging the Gap to Better Treatments and a Cure for SYNGAP1 Patients and Families

Making a Difference

What is Bridge the Gap?

Bridge the Gap – SYNGAP Education and Research Foundation (BTG) is the leading, 501(c)3 non-profit, patient advocacy organization dedicated to improving the quality of life for patients and families affected by SYNGAP1.

Our priorities include raising public awareness, patient and family advocacy initiatives, educational programs, scientific research conferences and financial support for research.

In addition, Bridge the Gap maintains the largest SYNGAP1 (MRD5) Online Natural History Data Registry in coordination with NORD and with grant funding provided by the FDA. The registry helps us provide the data needed to accelerate SYNGAP1 research.

We have also formed strategic partnerships and collaborations with a diverse group of SYNGAP1 stakeholders to help accelerate the pace of research and maximize our impact.

We Remain Committed Every Day to
"Building Bridges of Hope to Better Treatments and a Cure for SYNGAP1!"

SYNGAP1 is a rare genetic disorder.

It can cause intellectual disability, epilepsy, autism, sensory
processing disorders and behavior challenges, ranging from mild to severe.

We are here for you

Patients, Families and Caregivers

Advocacy, Education, Research &
Clinical Centers of Excellence

Learn More
Syngap1 - awareness, advocacy & accelerated research

Action = Impact

We are Committed to a Better Future for All SYNGAP1 Patients and Families!


Watch our Video and Learn More About - BTG's SYNGAP1 STORY

Narrated by

Monica Weldon, Founder/CEO
Bridge the Gap - SYNGAP Education and Research Foundation

Monica Weldon, President/CEO
Bridge the Gap - SYNGAP ERF
ABOUT US

Learn About
Our History &
Meet Our Team

In September 2014, Monica Weldon, along with a small group of families, each with a child diagnosed with a SYNGAP1 mutation, came together to form Bridge the Gap – SYNGAP Education and Research Foundation.  

United by their common bond, it drove their desire to raise awareness and search out treatments to improve the quality of life for their children.

Learn about our team
research

Leading the Charge in Syngap1 Research

Our Innovative Collaborations with Reseachers and
Clinicians are Making an Impact!

Learn More