Dedicated to Improving the Lives of
Children, Adults & Families Affected by SYNGAP1

We are Bridging the Gap to Better Treatments and a Cure for SYNGAP1 Patients and Families

Guess What's Just Around the Corner...
Join us for an Amazing 24 hours of Fun & Fundraising on #GivingTuesday!
December 1, 2020

Find out more by visiting our #GivingTuesday Page

ACTION = IMPACT
YOUR DONATION CAN MAKE A BIG IMPACT!
100% of All Donated Funds will Help Support:
  • SYNGAP1 RESEARCH COLLABORATIVES
    BRIDGE THE GAP IS BRINGING TOGETHER
    ALL SYNGAP1 STAKEHOLDERS TO
    ACCELERATE NEW TREATMENT RESEARCH!
    SYNGAP1 Patients & Families + Clinical Experts + Researchers + Regulatory Agencies + Industry
  • BRIDGE THE GAP'S - SYNGAP1 (MRD5) NATURAL HISTORY STUDY & PATIENT REGISTRY
    *Data is Always FREE for Approved Research Studies

  • BRIDGE THE GAP'S - SYNGAP1 CENTERS OF EXCELLENCE 
    WHERE SYNGAP1 PATIENTS & FAMILIES RECEIVE: 
    Expert, Multi-Disciplinary Medical Care
    The Latest Treatments
    Access to SYNGAP1 Clinical Trials
  • SYNGAP1 FAMILY & CAREGIVER SUPPORT
    Online SYNGAP1 Family & Caregiver Support Group Community Community Resource Assistance
    Educational Webinars
    Family & Caregiver Get Togethers & Mini-Conferences
  • SYNGAP1 CLINICIANS & RESEARCHERS
    Access to SYNGAP1 Natural History & Patient Registry Data *Must be an IRB Approved Research Study
    International Scientific Conferences (every 2 years)
    Support for Neuroscience Young Investigators
  • BRIDGE THE GAP'S WEBSITE
    Filled with SYNGAP1 Resource Information & Materials
    Posting the latest SYNGAP1 Research News
    Encouraging Engagement Between SYNGAP1 Patients, Families, Clinicians & Researchers
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The SYNGAP1 Meeting Public Comment Form is available until December 20, 2020.
 SYNGAP1 Patients, Families & Caregivers
Did You Miss the Live Meeting?
There is still time for your Voice to be Heard!
Click on the Purple Button to access the
Meeting Hub Page & Meeting Comment Form
Making a Difference

What is Bridge the Gap?

Bridge the Gap – SYNGAP Education and Research Foundation (BTG) is the leading, 501(c)3 non-profit, patient advocacy organization dedicated to improving the quality of life for patients and families affected by SYNGAP1.

Our priorities include raising public awareness, patient and family advocacy initiatives, educational programs, scientific research conferences and financial support for research.

In addition, Bridge the Gap maintains the largest SYNGAP1 (MRD5) Online Natural History Data Registry in coordination with NORD and with grant funding provided by the FDA. The registry helps us provide the data needed to accelerate SYNGAP1 research.

We have also formed strategic partnerships and collaborations with a diverse group of SYNGAP1 stakeholders to help accelerate the pace of research and maximize our impact.

STAY UP TO DATE ON ALL
THE LATEST BTG & SYNGAP1 NEWS!
Want to Learn More About Bridge the Gap?
Check Out Our
2020 IMPACT REPORT

Programs & Activities

We Remain Committed Every Day to
"Building Bridges of Hope to Better Treatments and a Cure for SYNGAP1!"
BRIDGE THE GAP - RECIPIENT of GUIDESTAR'S
2019 PLATINUM SEAL OF TRANSPARENCY

SYNGAP1 is a rare genetic disorder.

It can cause intellectual disability, epilepsy, autism, sensory
processing disorders and behavior challenges, ranging from mild to severe.

We are here for you

Patients, Families and Caregivers

Advocacy, Education, Research &
Clinical Centers of Excellence

Learn More
Syngap1 - awareness, advocacy & accelerated research

Action = Impact

We are Committed to a Better Future for All SYNGAP1 Patients and Families!


Watch our Video and Learn More About - BTG's SYNGAP1 STORY

Narrated by

Monica Weldon, Founder/CEO
Bridge the Gap - SYNGAP Education and Research Foundation

Monica Weldon, President/CEO
Bridge the Gap - SYNGAP ERF
ABOUT US

Learn About
Our History &
Meet Our Team

In September 2014, Monica Weldon, along with a small group of families, each with a child diagnosed with a SYNGAP1 mutation, came together to form Bridge the Gap – SYNGAP Education and Research Foundation.  

United by their common bond, it drove their desire to raise awareness and search out treatments to improve the quality of life for their children.

Learn More about Bridge the Gap
research

Leading the Charge in Syngap1 Research

Our Innovative Collaborations with Reseachers and
Clinicians are Making an Impact!

Learn More