Making an impact!

BTG - Community Partnerships

Our organization partners with like-minded, mission-driven non-profit organizations that are committed to supporting the SYNGAP1 and rare disease community.

    BTG - We believe in the Ability of Our Non-Profit Community Partnerships and Collaborations to Create Positive Impacts for the SYNGAP1, Neurological Disorder and Rare Disease Communities.

    Together we are stronger.

    The Alliance for a Stronger FDA is committed to an ongoing, multi-year effort with two specific goals, to assure that the U.S. Food and Drug Administration (the FDA)has sufficient resources to protect patients and consumers and to maintain public confidence and trust in the FDA.

    The American Brain Coalition, a nonprofit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.

    Beyond the Diagnosis unites art and science to inspire research and innovation of treatments for people living with orphan and neglected diseases.

    Biotechnology Innovation Organization (BIO) is the world's largest trade association representing biotechnology companies, academic institutions, state biotechnology centers and related organizations across the United States and in more than 30 countries.

    The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

    EURODIS-Rare Diseases Europe, is a unique, nonprofit alliance of 864 rare disease patient organizations from 70 countries, that work together to improve the lives of the 30 million people living with a rare disease in Europe.

    Global Genes was born - to connect, empower and inspire the rare disease community.

    The Haystack Project is committed to the Rare and Ultra Rare Disease Community. It brings together Innovators, Patients and Caregivers to educate and advocate for policies that recognize the unique circumstances of extremely rare conditions and treatments.

    NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with a rare diseases and the organizations that serve them.

    Rare Disease Legislative Advocates is a program of the EveryLife Foundation for Rare Diseases designed to support the advocacy of all rare disease patients and organizations.

    RehabMetrics mission is to capture the best metric and apply meaningful, actionable data analysis to advance patient care and the field of rehabilitation.

    Simons Searchlight includes leading researchers, families, and individuals. Each of us is dedicated to advancing the science of genetic changes related to autism.

    ThinkGenetic locates individuals with diagnosed and undiagnosed genetic diseases using artificial intelligence (AI) solutions.

    Patient Worthy® provides current and continuous coverage of rare disease patient experiences, news, and events, through an online platform and broad social media presence.

    Through education, awareness and a touch of humor, Patient Worthy helps patients, caregivers and support persons by providing relevant, often inspirational stories.
    Patient AirLift Services (PALS) is a 501(c)(3) nonprofit that arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially.

    PALS also arranges volunteer flights for family members of patients as compassionate missions, to ensure patients have support when they are away from home for long periods.

    PALS is proud to assist military personnel and their families with free flights to aid in the recovery and rehabilitation processes for our wounded veterans.

    Finally, PALS has a history of supporting humanitarian efforts in the event of natural or man-made disasters.