SYNGAP1 & Epilepsy

Awareness, Advocacy, Education & Research

How are SYNGAP1 & Epilepsy Connected?

What is a seizure?

A seizure is a sudden surge of electrical activity in the brain.

A seizure usually affects how a person appears or acts for a short time.

Many different things can occur during a seizure.

Whatever the brain and body can do normally can also occur during a seizure.

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Epilepsy Resource Information provided by the
American Epilepsy Foundation

Types of Epilepsy Syndromes?

An epilepsy syndrome is defined by a group of features usually occurring together.

The features in a syndrome may include types of seizures commonly seen, age when seizures commonly begin, part of the brain involved, usual course, genetic information, and much more.

Collectively this description provides information on what medicine and other treatments may be helpful.

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The Rare Epilepsy Network (REN) Registry gathers patient and caregiver-reported information in order to conduct patient centered research.

REN is a collaboration between the Epilepsy Foundation,
RTI International, Columbia University and nearly 30 patient organizations.

Syngap 1 Resources