Michele Giblin lives in the Republic of Ireland with her husband and three children.
Her youngest daughter was diagnosed with Syngap1 in 2016 when she was 6 years old.
Michele is building awareness for Syngap1 in her home country, and works to the motto ‘Think Wide, Collaborate and Connect’. There is much to be gained in sharing and working together, and she is pleased to be part of the Family Advisory Council.
My name is Jasmine Hall and I am married to my best friend and a mother to two beautiful boys.
My oldest son was diagnosed with SYNGAP1 at sixteen months old. That's when our entire world shifted and the search for answers began.
However, I love sharing our experience with our son'd rare genetic disorder, because it brings awareness to the disease.
Shane Norris is the father of Colby (9 years old), who was diagnosed with SYNGAP1 in 2017.
He is married to his wonderful wife of almost 17 years, Rebecca and they have two older daughters, Syndey (15) and Mia (12).
Shane has been in the insurance industry for 18 years and in Human Resources the past 10 years.
Brenda Weegman is an Oncology RN at Regions Hospital in St. Paul, Minnesota. Brenda and her husband have three children; Hana (13), Bret (8), and Danika (6). They also have 2 dogs, 7 birds and a variety of fish tanks.
SYNGAP1 is something that she and her family have lived with for the past 6 years, but only learned about it when when Danika was diagnosed in July 2018.
Brenda is proud to represent Bridge the Gap as part of the Family Advisory Council and is excited to see what the future holds!