Bridge the Gap - Special Events, Programs & Fundraisers

SYNGAP1 - Awareness, Advocacy, Education & Research

Upcoming Events

CLICK ON AN EVENT BELOW TO LEARN MORE!
It's Almost That Time of Year Again...
#GivingTuesday - December 1, 2020

Join us for 24 hours of unprecedented Fun & Fundraising on #GivingTuesday!

All funds raised will go to support SYNGAP1 Research, Awareness, Education & the SYNGAP1 (MRD5) Natural History Study and Registry

Find out more by visiting our #GivingTuesday page and remember – December 1, 2020 is the day to give!
2020 FALL FAMILY WEBINAR SERIES
September 2020 - December 2020

Join us for this free webinar series!

Series Topics Include:
Sensory Processing Strategies for Home & Classroom
Supporting Siblings of People with Special Needs
The Science of Keto Diets
U.S. Policy Initiatives on CBD

CLICK HERE TO LEARN MORE & REGISTER FOR A WEBINAR

2020 International SYNGAP1 Scientific Virtual Conference &
Pre-Conference Young Neuroscience Investigator Workshop


November 17 - 19, 2020

The Conference & Workshop will both be held as an Interactive,
Live Stream Virtual Webinar
CLICK HERE TO LEARN MORE & REGISTER.
Externally-Led Patient Focused Drug Development Meeting:
SYNGAP1 PATIENT & CAREGIVER VOICES

Hosted by: Bridge the Gap

November 19, 2020
12:30 PM - 5:00 PM EST, U.S. & Canada

Join us for a Free, Live Stream, Interactive Meeting for
All SYNGAP1 Community Stakeholders

CLICK HERE TO LEARN MORE & REGISTER!
Check out Bridge the Gap's

FALL 2020


FAMILY WEBINAR SERIES
Tuesday, September 29, 2020

Time: 3:00 pm - 4:00 pm EST, U.S. and Canada
If you missed the seminar, you can watch it on YouTube, by clicking on this link: https://youtu.be/kQiWKxSs41g

Sensory Processing Resource Information
Creating a "Sensory Diet"
Strategies for Home and Classroom
Presented by:  
Leslie Baldwin-Ruthven, Rare Disease & Autism Advocate, Former Manager/Teacher - The Bridges Program
Texas Children's Hospital, Houston, TX
Thursday, October 8, 2020

Time: 2:00 pm - 3:00 pm EST, U.S. and Canada

Registration is Free! Click here to Register  
https://zoom.us/meeting/register/tJUufuCtqTstHdT7K1e4QXNRhi5HKBWHFbaF
Siblings of Those with Special Needs
Presented by:
Walter Suskind, Founder
SibStrong
Thursday, October 22, 2020

Time: 2:00 pm - 3:00 pm EST, U.S. and Canada

Registration is Free!   
Click Here to Register
https://zoom.us/meeting/register/tJIuc--rDIoE9wnX7oYCsf0WuzcIR7ClPDa
The Science of Keto Diets
Presented by:
Donna Herber, PhD, Chief Science Officer,
Disruptive Enterprises, LLC
& Kevin Waggoner, Medical Science Liaison, Director of Patient Advocacy, Trumacro
Tuesday, October 27, 2020

Time: 1:00 pm - 2:00 pm EST, U.S. and Canada

Registration is Free!   
Click Here to Register
https://zoom.us/meeting/register/tJ0tfGurj8vGdA2q69vm3bcAhZ5MaRA3Wou
U.S. Policy Initiatives on CBD
Presented by:
Deborah  Walters, MPA and Jordan Stewart, PhD
Greenwich Bio & CCCS  Committee Science
SAVE THE DATE!

WE ARE GOING VIRTUAL FOR A VERY IMPORTANT MEETING!
When: November 19, 2020          Time: 12:30 pm - 5:30 pm (EST)
*Registration is Free
REGISTER HERE
Webinar Speakers Include:
James Valentine, Esq.
Associate
Hyman, Phelps & McNamara, PC
Larry Bauer
Senior Regulatory Drug Expert
Hyman, Phelps & McNamara, PC
WATCH OUR  
INFORMATIONAL WEBINAR
SYNGAP1: PATIENT VOICES
EXTERNALLY LED - PATIENT FOCUSED DRUG DEVELOPMENT MEETING
WHEN:  Thursday, November 19, 2020
TIME:  12:30 pm - 5:30 pm (EST) 
The Webinar Features the Following Topics & Information:
  • History of FDA - Patient Focused Drug Development Meetings
  • Purpose of Externally Led - PFDD Meetings
  • Planned Structure of the SYNGAP1: Patient Voices PFDD Meeting
  • Opportunities for SYNGAP1 Patients & Families to Participate
  • Expected Meeting Outcomes & SYNGAP1 Community Impact
  • Question/Answer Segment
Bridge the Gap is Excited to Announce Our Upcoming -

EXTERNALLY LED - PATIENT FOCUSED DRUG DEVELOPMENT MEETING
"SYNGAP1: PATIENT VOICES"
Bridge the Gap - SYNGAP Education and Research Foundation is excited to announce we will be hosting SYNGAP1: Drug Development Meeting

Learn more about why this EL-PFDD Meeting is a critical step in our strategy to help help accelerate the research pathway toward new therapeutic treatments for those affected by SYNGAP1. Learn more about Externally Led -Patient Focused Drug Development Meetings on the FDA PFDD Website.

Check out what other patient advocacy organizations are sharing about their experiences and how they benefited from hosting an Externally Led - PFDD Meeting - Here: Taking Stock of PFDD: A Vibrant Future for Patient-Focused Drug Development.

BTG's EL-PFDD Meeting will be held as a virtual, live-stream event, that is accessible and free to all SYNGAP1 Community Stakeholders. The meeting will have guest moderators and include a participating panel of SYNGAP1 patients/families/caregivers, families; SYNGAP1 clinical/research experts and regulatory experts. Virtual attendees will have opportunities to ask questions and provide comments during the meeting and for 30 days post-meeting.

Please contact us with any questions you may have regarding this meeting.



Contact Us
COMING THIS FALL!

BTG'S - 3rd INTERNATIONAL SYNGAP1 SCIENTIFIC CONFERENCE
NOVEMBER 17 - 19, 2020

Brought to You as a Virtual - Live Stream Interactive Webcast
Bridge the Gap’s International SYNGAP1 Conference provides a cutting-edge, scientific and educational
forum focused on bringing together a diverse group of SYNAP1 Community stakeholders.  SYNGAP1 Community stakeholders include - research scientists, clinical specialists, SYNGAP1 Families, industry, academic, governmentand community leaders.  

In addition, the conferences provide opportunities to bring  together scientists and clinicians actively involved in SYNGAP1 Research with trainees,young investigators, and underrepresented minorities, as well as, experts in the development of targeted therapies related to neurodevelopmental disorders.  Our goal is to increase participation of trainees,young investigators and underrepresented minorities in neurodevelopmental disorder research and to encourage the development of targeted therapies to treat SYNGAP1 and related neurodevelopmental disorders.

The conferences are designed to maximize scientific resources, encourage opportunities for collaboration and provide a forum that is inclusive for SYNGAP1 families and caregivers.  Each conference features a broad range of sessiontopics related to SYNGAP1 mutations, related neurodevelopmental disorders, published and unpublished research data and patient-centric study design. Time is allotted during each presentation for SYNGAP1 experts to lead discussions on current and future avenues of research.
Interested in registering for our upcoming

BTG - International SYNGAP1 Scientific Conference? Click on the button below to view our Conference Page and link to the registration site.
2020 Conference Page

Recent Events

DATE:  June 28, 2020

Hollywood & Broadway Come Together to
Support SYNGAP1

Bridge the Gap recently hosted their
First Virtual Livestream SYNGAP1: Patient Voices Fundraiser on Sunday, June 28, 2020

An Evening of Inclusion, Conversation, Song, Dance & Hope for all SYNGAP1 Community Members!

The fundraiser featured an incredible lineup of star-studded entertainers from Broadway, Hollywood, and Social Media.

100% of proceeds raised will be utilized to support BTG's upcoming Externally Led - Patient Focused Drug Development Meeting  November 19, 2020.