Bridge the Gap - Special Events, Programs & Fundraisers

SYNGAP1 - Awareness, Advocacy, Education & Research

Upcoming Events

Scheduled Speakers Include:
James Valentine, Esq.
Associate
Hyman, Phelps & McNamara, PC
Larry Bauer
Senior Regulatory Drug Expert
Hyman, Phelps & McNamara, PC
JOIN US FOR AN
INFORMATIONAL WEBINAR
About the Upcoming November 2020
SYNGAP1: PATIENT VOICES
PATIENT FOCUSED DRUG DEVELOPMENT MEETING
WHEN:  Monday, August 3, 2020
TIME:  3:00 pm (Eastern)  2:00 pm (Central)
The Webinar will Cover the Following Topics & Information:
  • History of FDA - Patient Focused Drug Development Meetings
  • Purpose of FDA Externally Led - PFDD Meetings
  • Planned Structure of the SYNGAP1: Patient Voices PFDD Meeting
  • Opportunities for SYNGAP1 families to participate
  • Expected meeting outcomes & SYNGAP1 community impact
  • Questions/Answers
SAVE THE DATE!

WE ARE GOING VIRTUAL FOR A VERY IMPORTANT MEETING
When: November 19, 2020          Time: 12:30 pm - 5:30 pm (EST)
Bridge the Gap is Excited to Announce Our Upcoming -

EXTERNALLY LED - PATIENT FOCUSED DRUG DEVELOPMENT MEETING
"SYNGAP1: PATIENT VOICES"
Bridge the Gap - SYNGAP Education and Research Foundation is excited to announce we will be hosting the first SYNGAP1: Patient-Focused Drug Development Meeting in the United States.

Bridge the Gap is one of only 30 organizations selected by the FDA to hold an Externally Led - PFDD meeting, since the FDA program began in 2012.

Learn more about why this PFDD Meeting is a critical step in our strategy to help help accelerate the research pathway toward new therapeutic treatments for those affected by SYNGAP1. Learn more about Patient Focused Drug Development Meetings on the FDA PFDD Website.

Check out what other patient advocacy organizations are sharing about their experiences and how they benefited from hosting a PFDD Meeting - Here: Taking Stock of PFDD: A Vibrant Future for Patient-Focused Drug Development.

BTG's PFDD Meeting will be held as a virtual, live-stream event, that is accessible to all SYNGAP1 Community Stakeholders. The meeting will have a guest moderator and include a participating panel of SYNGAP1 patients, caregivers and families, SYNGAP1 clinical and research experts. Virtual attendees will have an opportunity to ask questions and provide comment.

We will be providing updates as we move closer to the meeting date and can't wait to share more with you! Please contact us with any questions you may have.

Contact Us
COMING THIS FALL!

BTG'S - 3rd INTERNATIONAL SYNGAP1 SCIENTIFIC CONFERENCE
NOVEMBER 17 - 19, 2020

Brought to You as a Virtual - Live Stream Interactive Webcast
Bridge the Gap’s International SYNGAP1 Conference provides a cutting-edge, scientific and educational
forum focused on bringing together a diverse group of SYNAP1 Community stakeholders.  SYNGAP1 Community stakeholders include - research scientists, clinical specialists, SYNGAP1 Families, industry, academic, governmentand community leaders.  

In addition, the conferences provide opportunities to bring  together scientists and clinicians actively involved in SYNGAP1 Research with trainees,young investigators, and underrepresented minorities, as well as, experts in the development of targeted therapies related to neurodevelopmental disorders.  Our goal is to increase participation of trainees,young investigators and underrepresented minorities in neurodevelopmental disorder research and to encourage the development of targeted therapies to treat SYNGAP1 and related neurodevelopmental disorders.

The conferences are designed to maximize scientific resources, encourage opportunities for collaboration and provide a forum that is inclusive for SYNGAP1 families and caregivers.  Each conference features a broad range of sessiontopics related to SYNGAP1 mutations, related neurodevelopmental disorders, published and unpublished research data and patient-centric study design. Time is allotted during each presentation for SYNGAP1 experts to lead discussions on current and future avenues of research.
Interested in registering for our upcoming

BTG - International SYNGAP1 Scientific Conference?
Contact Us

Recent Events

DATE:  June 28, 2020
To check out the amazing performances and get more information about, BTG's upcoming Patient Focused Drug Development Meeting, click on the button.
Learn More Here

Hollywood & Broadway Come Together to
Support SYNGAP1

Bridge the Gap recently hosted their
First Virtual Livestream SYNGAP1: Patient Voices Fundraiser on Sunday, June 28, 2020

An Evening of Inclusion, Conversation, Song, Dance & Hope for all SYNGAP1 Community Members!

The fundraiser featured an incredible lineup of star-studded entertainers from Broadway, Hollywood, and Social Media.

100% of proceeds raised will be utilized to support BTG's upcoming FDA Patient Focused Drug Development Meeting  November 19, 2020.