Mary Cobb is a passionate advocate of patients with rare diseases and the Principal of PatientVue, LLC, an advisory business established to forge patient-centric partnerships between patient groups and the life sciences industry to make a difference for the rare disease community. Integral to this business is a focus on guiding and empowering disease-specific patient groups and aligning key interests in partnership with the life sciences industry to achieve common goals. Previously, Mary spent several years as Senior Vice President, Membership & Organizational Strategy at NORD (National Organization for Rare Disorders), the umbrella non-profit organization dedicated to education, advocacy, research, and patient services on behalf of the rare disease community. Mary was on the leadership team at NORD and led outreach to disease-specific patient advocacy organizations to build the membership community and help them deliver on their mission. She was instrumental in relationship-building to develop partnerships with key external stakeholders, including the pharma/biotech industry. Prior to joining NORD, Mary has over 25 years of experience as a leader at global healthcare communications agencies in strategic planning, marketing, communications, and patient and professional medical education in conjunction with the biotech/pharma industry. Mary held senior positions at several global companies and was involved in establishing and serving as President and CEO of PACE, a healthcare communications agency within the Interpublic Group Network of healthcare companies. Mary puts her passion for advocacy into action by serving on the Board of Directors of the Foundation for Sarcoidosis Research, a non-profit dedicated to improving the quality of life of people with this inflammatory disease which affects multiple organs in the body. After serving on the board of the Phelan-McDermid Syndrome Foundation, she continues as an Advisor to this foundation dedicated to accelerating research, providing family support, and raising awareness for this rare genetic condition associated with developmental disabilities. Mary is also passionate about the arts and an advocate for the role of women in healthcare. She was a former President and Board Member of the Healthcare Business Women’s Association (HBA), a non-profit dedicated to furthering the advancement and impact of women in the business of healthcare and continues in an advisory capacity. She is currently on the Board of Trustees of MPAC, the Mayo Performing Arts Center in Morris County, NJ. She holds an MS degree in Organization Development from American University in Washington, DC.